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Alive and Kickin'

Posted by Mimspicker on Saturday, November 8, 2008

Alive and Kickin’ November 8, 2008

It’s been a couple of months since my last blog and a lot has happened since then.

I missed most of August, the entire month of September and another three weeks in October from work. I am happy to announce that I have returned to work. My Doctor was surprised that I was returning. I guess he thought that I would just crawl up, curl up and quit living. Not me. I’m fighting this thing as hard as I can.

When I posted my last blog I was beginning to wonder if I would ever drive a car again, be able to walk somewhat normally and do some of the simpler things in life. One real problem was the ability to sit in a chair for more than a few minutes without hurting so bad that I had to lie down. I am happy to say that I have gotten beyond that stage. I was able to get back to work, go out to eat and in general be able to live my life again.

Up until about three weeks ago it had been almost three months since I had been able to take my wife out to dinner. We went to dinner at a local steakhouse and it was nice to get out. I had missed more than two months of work and it was nice getting back to the office.

So most of the pain has gone away. There is still some pain when I walk, but it’s bearable.

Getting into Doctors. In my last blog I had been turned down by MD Anderson. Because of the pain my Doctors had suggested a procedure called kypoplasty. I called a well known orthopedic group and tried to get an appointment. After of almost two weeks of waiting, they just flat turned me down. Imagine, I’m sitting there hurting, can’t walk or sit and the Doctors just refused to see me. I eventually got into another group in Orlando. One was an Orthopedic Oncologist and the other was the spine surgeon. They were very thorough, taking many new x-rays, MRI’s and a Bone Scan. Their final assessment was that there was no medical reason for the kypoplasty as it wouldn’t help with the pain. They came to the conclusion that the pain was "bone pain" associated with the cancer. It’s like a dull toothache. Sometimes it hurts a little more, sometimes, hardly at all. Mobility has become the number one issue at this point.

I’m looking into getting a mobility scooter. I can walk short distances without much trouble. If I want to go somewhere like to the mall that requires a lot of walking, I just can’t do it. I would love to be able to go to a craft fair, festival or other event where you are doing a lot of walking. A mobility scooter will certainly help with the "quality of life" issue. I have contacted my insurance company and they will pay 100% of a scooter provided I have a prescription from my doctor and there is a medical necessity.

I have lost my voice, somewhat. I have an enlarged lymph node pressing against the vocal cord, thus causing hoarseness in my voice. I am back in chemo treatments hoping the chemo will reduce the size of the lymph node, etc. I had my first of three treatments about three weeks ago. I have another scheduled for next Thursday. Hope I don’t get as sick as I did three weeks ago. It put me in the hospital for a couple of days. Anyway it’s the treatment plan my Doctors have come up with and until there is something better, I’ll stay in treatments.

I’m looking forward to the holidays this year. Thanksgiving and Christmas are coming upon us. Nothing is more important to me right now than to spend this time with family. Tell someone you love them. Give your wife/husband and kids a hug. We just never know how much time we have. My faith remains strong and I hope my life is a testimony to others struggling with things that they can’t control. I know who is in control and my faith is in Him.

Thanks to all my Hangout Friends who have e-mailed me, offered their words of support, encouragement, and prayers. You guys (and gals) are awesome.

Bill

Mimspicker



16 comments on “Alive and Kickin'”

Ks_5-picker Says:
Saturday, November 8, 2008 @3:25:49 PM

Bill,you're an inspiration to us all....Keep on keepin on. I'm praying for  you too.......

beeliner Says:
Saturday, November 8, 2008 @3:42:27 PM

Bill I'm sorry to hear about your health problem. I do hope the treatments take care of the problem and that you get well soon. I will certainly pray for you. May the God of all comfort be with you and your family at this time.
Best regards, Revis

Cottonmouth Says:
Saturday, November 8, 2008 @5:39:04 PM

It is great to hear that you are doing so much better, Bill. I know how good it must feel to be able to function again after what you've been through. There is nothing greater than the power of prayer and a strong faith in God. You are blessed. Ken

clio Says:
Saturday, November 8, 2008 @6:14:16 PM

Bill, I use a cane seat. Cost about $50 internet. Use it as cane, but when get tired or waiting in a line, the cane has 2 other short legs and a folding seat attached, so you can open it and sit down to wait and rest. Carry it in car trunk for when you dont want to use a scooter. Glad to hear you're getting about better.

FiddlerFaddler Says:
Saturday, November 8, 2008 @7:38:03 PM

For I reckon that the sufferings of this present time are not worthy to be compared to the glory which shall be revealed in us. - Romans 6:18  Bill, you are an inspiration to us all.  Our hearts and our prayers are with you and your family.

the-fish Says:
Saturday, November 8, 2008 @8:15:03 PM

Bill I was just wondering about your health this past week and checked for a blog update the other day.. I truly wish and pray. My best wishes for all of you

TopCat Says:
Sunday, November 9, 2008 @2:14:06 AM

Sorry to hear about the dreadful time you've been having but glad that things are improved and that you are getting some normality back in your life. Thanks for the timely reminder to appreciate good health and family. All the best to you and yours.

Debbielee Says:
Sunday, November 9, 2008 @4:23:57 AM

I was wondering how you were doing and wanted to let you know that I've had you in my prayers.  I'm glad you have found some relief  and that it allows you to get back to feeling somewhat normal again.  I will pray that you will continue to improve.  I really admire your spirit.  Keep fighting and we'll keep praying.

mainejohn Says:
Sunday, November 9, 2008 @4:36:23 AM

Bill...my thoughts and prayers are with you. Enjoy the holiday season and all the blessings that go with this time of the year. Wish I were closer so I could drop by and say hello.

bmiller Says:
Sunday, November 9, 2008 @5:50:29 AM

God Bless you MIMS. We are all pulling for you. Take care and I read when you post updates.

Have a wonderful holiday season with your family. My best to you always,

 

BJ

 

Louisiana Rose Says:
Sunday, November 9, 2008 @7:22:07 AM

Bill, my prayers are with you, I sincerely pray that you will be able to come through these trials a much stronger person. 

DJMorgan Says:
Sunday, November 9, 2008 @8:51:04 AM

My thoughts and prayers go out to you Bill.  Your truly an inspiration.

kathy315 Says:
Sunday, November 9, 2008 @9:11:58 AM

Bill..thanks for taking time to post!! You are an inspiration to all of us...My prayers are with you and your family...One day at a time...

Jammer Says:
Sunday, November 9, 2008 @11:02:39 AM

I have been pulling for you BIl, just as I do with all of the other members here that ask for praying. It sounds like you have been through A LOT! I'm sure it's way more than I have been through.  For starters I'm very happy to learn that your ahle to return to work and drive your car! Way to go!!

 I know about chronic pain. SOMETIMES surgery leaves us in pain for the rest of our lives. My pain first hit me almost two full years after my operation, but it's related because it hurts at the same area that the doctor operated at. This leaves us with a choice. If you can tolerate such pain then I take my hat off to you. It the doctors have talked and figure there is no operation etc.. that will get you out of pain, then that of course leaves only one thing. And that is narcotic pain killers. Never be too scared of addiction to take such medication AS PERSCRIBED. Such meds have improved my life 100%. Without them I think I would be in too much pain to hold a job- any job. Most doctors make sure their patients never abuse their narcotics by doing random drug tests an/or randon pill counts- this way they can prove your NOT sharing/selling nor abusing your pain meds. As long as your ok with all of that, don't fear addiction and consider any long term treatment plan for pain they offer to you. Be sure and let them know if a certain med does not work. Some people can take Morphine pills and still be in pain, while otehrs prefer to take Morphine pills for pain- they can be extended release and slowly disolve over your day, so you never get a "rush" which is what abusers chase. Taken as prescribed you may never feel addicted, all your will know is that your pain will be less. Take it from a person that was diognosed with unexplained (well, it had to be my kidney operation) chronic pain for over three years now. Sometimes all tehy can do is treat the pain. Surgeries often make long term chronic pain worse, not better. So, be ready just in case your doctors can't find a cure for your pain. As a matter of fact, MOST chronic pain is unexplained AND can NOT be fixed by a operation. We have milllions like us in America, and it helps to enroll in the Chronic Pain support groups within Google Groups (UseNet - old school group)


I'm glad the worse is over for you, but I'm also saden to learn of your pain. My pain forced me to take some pretty hard narcotics AND strong nerve pills because of the panic attacks which were induced by the constant pain. When pain NEVER stops it takes it's toll on your central nervious system and chronic pain sufferers OFTEN have to take nerve medications (called "Benzos..") like Valium or more likely Klonopin or Xanax. Don't be scared of addiction if your doctors ask you to consider such a program. When your in pain and a battle of nerves there just meds that your body may need to be able to funtion more normally.

Sorry to drigt off topic, if I did. I only hope and pray they can cure your pain because I know what happens when the doctors give up on curing pain- next step is pills that you have to lock up from strangers in your home. It's no fun taking such stuff for the remander of one's life, but it sure beats being in so much pain that a grown man crys everyday too. Most chronic pain will vary in intensity, with some days being a level 8 or 9, while other days may only be at a level 4-7. This is normal for people with chronic pain that can't be cured with an operation. I still have good days and bad days. My pain is likely not like yours, but I do know that somedays it is FAR worse than other days, and I as of yet have been unable to find it's trigger for such bad pain days.

I'll pray for you soon. God Bless, and I'm glad to hear the good news too.

Your friend, God Bless.

Terry

royce Says:
Sunday, November 9, 2008 @3:28:24 PM

Bill,

My prayers are with you often!   You're a special person and I know God will take care of you.   Hang in there and keep in touch when you can.  I hope to see you soon.   

On

royce Says:
Sunday, November 9, 2008 @3:28:25 PM

Bill,

My prayers are with you often!   You're a special person and I know God will take care of you.   Hang in there and keep in touch when you can.  I hope to see you soon.   

On another

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